Still going good and strong

Hello everyone! Just finished the second cycle of the new chemo and my body is starting to adjust to all the new meds, finally. Of course I still get fluids twice a week and do all of my pre meds as directed. It really helps to keep me from getting so sick. I think the worst two side effects are the nausea and fatigue. But I can manage. My hands and feet also are starting to get discoloration that looks like bruising, it’s not painful or anything, just looks weird. The doctor says that it’s normal, but if they get dry and start cracking then they will lower the dosage on the chemo, but until then we’ll keep the dose the same. They want to keep the dosage as high as my body will tolerate. :/ Other than that I’ve been feeling pretty good and have been enjoying eating again. I haven’t gained any weight, but I do eat.

So we are now in the pre planning stages of downsizing our home. My long term benefits with work will end in May of 2022 and that will be a significant loss in our income so we will need to find something with cheaper rent. Our 3 options are a cheaper, smaller rental if we can find one. An apartment, or a 5th wheel RV. We are going this weekend to look at some things. I’m not excited about this change, but I know it is inevitable. 😦

I wear glasses daily now. My blood sugars and vision finally stabilized so that I could get an accurate vision prescription. I just needed slight correction for distance and correction for reading. So I got trifocals, I can’t do the progressives, tried them twice before and could never get used to them. So the trifocals also have the correction for computer distance. So, so far they are really working well for me.

This is how blessed I am….I have made it for 4 years now. I have breast cancer in all five places that breast cancer goes to..the breast, lungs, liver, bones, and brain. I have been on consistent treatment of radiation and chemo for the last 4 years, and I’m still going strong. Cancer will not get me down!

To be honest my quality of life isn’t the best, but I am still blessed to be here living and breathing. I get to still enjoy my wonderful husband, kids, grandkids, the sunshine, the rain, windy days, my fireplace and if I want a weekend trip to the beach, we go.

I now have to ride in a wheelchair if we go places that require a lot of walking because I don’t have the lung capacity to walk long distances anymore, which sucks. I also have a fancy walker in case I need it. The neuroapathy in my feet and hands has affected the way I walk and type on this computer. And being so skinny now, at barely 110 pounds, I have no fat insulation to keep me warm, so I’m always cold!!

I can’t work anymore, so I stay home and try to keep busy. The fatigue and lack of energy keep me from doing a lot of things. Retiring early was a hard pill to swallow but I have finally accepted it. I watch TV, read, write, do puzzles, diamond paint, and color in adult coloring books. But mainly I try to manage my health…eat, drink, and don’t fall down.

So no matter where this cancer spreads to or grows, I will continue to fight with conventional treatment. I’m glad I didn’t go the holistic way cause I know of a lot of folks who did and they are no longer with us. 😦 I believe I’d be gone now too had I gone that route. I get scans again in mid-Dec and am praying for good news. I would like to start the new year with no radiation needed and still doing good on this chemo.

Goodnight everyone!

L.

Break from radiation

Hello! Yes, you read it right, I finally get a break from radiation! YYYYAAAAYYYYY!!!!

The brain MRI showed that the full brain radiation WORKED! The majority of the brain tumors either decreased in size, or remained stable! And NO new ones!!!! I was soooooo happy to know that the radiation that just about killed me was not done all in vain!

On the other hand…..the chemo I was on for the rest of my body has stopped working and the tumors in my lungs were growing and were coming together to form a big cluster that was blocking my airways. I had one in the upper left lobe and one in the right lower lobe. I could hardly breath. My lung Saturation rates were in the 80’s (oxygen time) to low 90’s. I was doing my breathing machine, (nebulizer) daily and strong cough meds. Then I was finally put on Prednisone which helped with the inflammation. My chemo was switched to a new and stronger chemo where I am on it for 2 weeks and then I get one week off. That chemo is the most toxic one. It’s an oral pill that I take 3 pills twice a day. I also take another oral pill where I take 2 pills twice a day everyday, no breaks. And last but not least I get a chemo infusion once every 3 weeks. The day I go in for the chemo infusion is the day I start the new cycle of the toxic chemo. They are all toxic, but the one I get a break from is the worst one.

The doctor was so happy that we got a lot of use out of the other chemo. Average is 7-8 months, I got about 18 months. This new chemo had good non progression rates in the chemo trials. The doctor was excited to see that after being on it for just 3-4 days, my breathing was already getting better! I started the 2nd cycle on Thursday. At first it took my body some time to get used to, it was rough. But I believe I’m starting to adjust being on it cause it’s getting more tolerable. Of course the pharmacist worked with me the first two weeks in getting to learn how to take the pre meds so I DON’T get sick. It’s a hell of a lot of medication I take daily…..but if it works…then I’ll do it!

My hair is growing back after losing it to brain radiation…..it’s stubbly and patchy.

Also, not sure if it’s from stopping the old chemo and/or the hydration from the fluids I now get 2 days a week, Butttt… I have Saliva!!!! I can eat foods again! Most foods anyways. I have about 80% saliva back. 🙂 My taste buds are still shot though. :/

I have a little more energy and am able to do lite chores again. Plus I have a new hobby called ‘Diamond Painting’. Look it up. It’s harder than it looks, but I’m getting the hang of it. It keeps me busy for sure and it’s so fun once you get the hang of it.

Well that’s the latest news. God bless everyone!

G’nite!

L.